Government teams up with Big Freeze 8 to fight MND

Media event date:

June 13, 2022

Date published:

June 14, 2022

Type of support:

Press release


General public

The Albanian government will provide $4 million to ensure the continued fight against Motor Neurone Disease (MND) is well-armed.

The funds will be provided over the next two years to FightMND in its quest to better understand the causes of this devastating disease and research potential treatments and a cure.

Announcing the funding during the eighth Big Freeze AFL match between Collingwood and Melbourne at the MCG, Minister for Health and Aged Care Mark Butler said FightMND’s vision of a world without MND was shared by the government Albanian.

“MND is rightly considered a beast,” said Minister Butler. “It’s an insidious disease that gradually affects the use of your arms and legs, your ability to eat and swallow, your speech and ultimately your ability to breathe.

“MND affects over 2,000 Australians, who tragically have an average survival rate of just over two years.

“In the absence of effective treatments or a cure, for these patients the focus is on alleviating symptoms, maintaining quality of life and mobility for as long as possible.”

FightMND was co-founded in 2014 by famed Essendon player and Melbourne Football Club coach Neale Daniher, who continues his personal battle with the disease.

“Since his diagnosis in 2013, Neale has fought hard against MND every step of the way,” said Minister Butler.

“His fight is for every Australian stricken with illness and I applaud his strength and determination.”

To date, FightMND has committed over $55 million to MND research, new drug development and clinical trials.

“I am thrilled to partner with FightMND and look forward to the day the MND beast is tamed,” Minister Butler said.

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